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As with all well run projects, you need to keep proper documentations. There a list of things that you should consider tracking and filing

1) All expenses
2) Insurance claims and payout
3) Medical reports and blood test results
4) Medical appointment dates, doctor's comments
5) Scan dates and results
6) Chemo drug names and quality
7) Meeting minutes (if you run it like a project, why not?)

I have find it extremely useful to put some of these data in spreadsheets. The blood tests for example are extremely useful to Chinese Physicians to customised their herbs to help balance the body.